Sunday, December 28, 2008

Yesterday was a tough day. Logan has been sick the entire weekend with a fever on and off, runny nose, cough and gooky eyes. Poor guy. I decided not to go to the hospital yesterday and stay with him. My family came over and helped clean up the house and take down all the Christmas stuff. I thank God for family. It was very hard for me not to go. I feel so torn between going to the hospital and spending time with logan. Since i was pretty active the past few days and was having some pain I thought it best to take the day off. Bob took his mother to see the babies. Mason had a pretty big setback. He had been having quite a few brady's. They were unable to stabilize him on the cpap and so he is back on the ventilator. Both Bob and I were pretty upset but the doctor had told us that could happen. He had just been moving along so well. Justin was doing really well. Had a few brady's but nothing major and so they started the 10 day feeding schedule again. Naoh had a few brady's as well. They drew more labs to see if he had an infection. Today Bob and I went to see the boys together. We were so surprised to see that both Mason and Justin had been taken off the photo therapy lights!! Since Mason is on the vent now his nose was clear and his eyes no longer covered. It was the first time I saw his face. I cried. It was so amazing to finally look at him and see what he looked like. Justin was off too and so we were able to see his as well though his nose is still covered but how wonderful to look in his eyes when he opens them. He even had on a little t shirt. So adorable. We spoke to the doctor and she updated us on everything. They xrayed Mason and his lungs and stomach look fine. The bld vessel is closed as well. He had labs drawn and everything looked good. His count was a bit low which means within the next 24-48 hours he will be getting a transfusion. She assured us that it was very common in preemies to get transfused. They only get about 2 teaspoons of blood. She explained that they really don;t know why he is having issues breathing through his nose. She thinks it is likely due to some sort of blockage, like secretion or actually a dried booger. Sometimes the nasal cavity can swell from the suction also and that could be causing him problems. He has been doing very well on the vent and they started his feeds up again. They only needed to put a peripheryl IV in for fluids and not a new pick line. If he stays on course with his feeds, the IV will come out after the transfusion. They will use saline drops in his nose and hope that he is able to clear whatever is blocking. If he pulls the tube out tonight they will try to put him back on cpap and see what happens. Justin is doing well. A couple brady's here and there but nothing significant. He is continuing his feeds and will increase tomorrow I think. He will need a transfusion as well but not for a couple days. They cannot transfuse in a pick line so they will need to give him another IV. Noah came off the lights while we there and opened his eyes before we left. He had a few brady's while we were there. They did blood work and it came back just OK. They started him on antibiotics in case he has an infection which could be the reason for the brady's. His bld count was higher than the others so they will wait on transfusing him until he is done with the antibiotics and they get the cultures back. They think the brady's are likely due to the secretions that settle in their nose and throat as a result of the cpap. All 3 of them have a lot. They attempted to take Mason out so Bob could hold him but he did not tolerate it well and we had to put him back in the isolet.
It is so hard to be there and hear all the alarms going off and know that there is nothing you can do to help. I'm not sure which is worse, being the for the alarms or not being there for them.

One of the teachers in logan's school is coming to help me out tomorrow since Logan is off from school for the week. My parents will take me to see the babies for a couple hours and hopefully there won't be any news. sometimes boring is a good thing.

1 comment:

Gail & Dave said...

Hi Bob and Tracey

GREETINGS TO THE COMMACK FAMILY FROM DAVE & GAIL, ENGLAND
We are delighted to hear the news. Lorrain sent us your blog address and we have been following your comments.

ALL THE BEST FOR 2009