I didn't feel like writing last night. Sunday was such a great day and then I walked in yesterday and every alarm was going off. I tried to hold Mason but he just kept dsat'ing and they had to put him back. When he eats he can't seem to get enough oxygen. They are going to extend his feedings over 40 minutes to see if that helps. he digests it all but for some reason during the feed he can't get it down. Justin had to go back on his canula. he was having a significant amount of brady's and just needed the help again. He also has not been gaining weight and actually has lost some. Not a good sign. So they are going up on his feeds tonight. He didn't tolerate the fortifying but seems to burn through the breast milk and so the other option is to try to give him more. Noah is looking incredibly pale. He is very anemic and they still haven't transfused him. I get why they don't want to do it but I can't stand seeing him so pale. His vitals are ok on the CPAP but he is still having brady's now and then. I was very unhappy with his nurse yesterday. It annoys me when I walk in and am standing by the isolet and the nurse sees me and doesn't acknowledge that she is taking care of my baby. even if they are busy it is nice for them to say I will be right there. Most of the nurses do. It is a select few who I don't care for. For some reason Noah seems to have a different nurse everyday. I don't know if no one has picked him as a primary or what but i really feel like he needs some consistancy. I feel like they don't know him and therefore won't know if he is acting different. I will call tonight and see how their weights are and see how they seem. I guess I am just having a bad day. The ups and downs are like a roller coaster. 2 steps forward and one step back. I keep reminding myself. Yesterday Noah's nurse told me they were putting him on amoxicillan prophilactictly. I asked her why now, today. he does have a kidney isse. It is called a duplicate system and basically he has 2 tubes going from the kidney to the bladder instead of one. She had no clue why they were doing it. I told her I wanted to talk to the dr. When the doctor came she told me the nurse must have misunderstood. They were not starting antibiotics. I was so annoyed that the nurse misunderstood. I mean really, get it together. Read the chart or take better notes. That's the kind of stuff that gets me upset.
One good thing is I do not have to continue the injections for my blood thinner. I am very happy about that. So now I just have to take pills once a day and then get bloodwork twice a week for 3 months. Great news. Although I would really like to have a few glasses of wine and I am not allowed to drink on the blood thinners.
Logan is doing well. we are trying to get him to eat a little better. Wow, what a pain in the butt. All he wants is crackers and applesauce. He ate 2 bites of chicken tonight. I was so proud he actually tried it. I am hoping he is eating well before the babies come home or he will probably want to go back on a bottle!!!
Anyway, I am hopeful tomorrow will be a good day. my friend kim is coming to visit and to see the boys. She has been sick and unable to visit so I am excited for her to mee them.
I hope everyone is doing well and I promise tomorrow not to be such a downer!!